I am a health charity professional with ten years’ experience in policy and research work. Prior to my current focus on cardiomyopathy, I developed substantial expertise in mental health and neurology.
I have substantial experience of representing patients’ interests. I acted as a patient and public voice representative as a lay member on the NICE suspected neurological conditions: recognition and referral Quality Standard. I served as a patient and public voice member on NHS England’s Neurosciences Clinical Reference Group. I also sat on the COVID-CNS study PPI panel during the initial stages of the project.
More broadly I have been at the forefront of work to involve service users in decisions about services and support in my role as Trustee/Chair of Trustees, steering a local mental health charity embedded in its community.
In my current role as Head of Research and Policy at Cardiomyopathy UK, I lead our advocacy workstreams, ensuring that people with cardiomyopathy have opportunities to have their voices heard in relation to research, and issues affecting their treatment and care.