Wendy Borsari is a patient advocate for cardiomyopathies.
I am a patient and a patient advocate. I was diagnosed with Hypertrophic Cardiomyopathy in my early twenties and have spent the last 26 years learning as much about my disease as I can. My passion for education and understanding has driven me to make this my career.
From October 2013 to May 2021, I worked with the Sacomeric Human Cardiomyopathy Registry (SHaRe) as the Patient Outreach and Education Coordinator. My principal goal during this time was educating patients about HCM and DCM and about the importance of research.
I have organized 8 patient conferences at some of the United States' top hospitals and in doing so educated more than 1200 patients and family members. I have had the privilege of consulting with pharmaceutical companies both large and small as well as hospitals, all in an effort to bring the patient voice to research and empower patients to become their own best advocates. An educated patient is an empowered patient, and an empowered patient truly sees themselves as being part of their care team, not just a recipient of that care.
I have recently started a new role as Senior Manager of Patient Advocacy at Tenaya Therapeutics.